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This is a blog about living with Neurofibromatosis

Sunday, January 25, 2015

Apparently I'm not much of a blogger.. Maybe Ill change that. Something has been brought to my attention that I'd like to point out. The photo of me that I post are my property, so please DO NOT share/upload ect without my consent. I recently discovered some used as profile photos. While I'm thrilled that the word of NF is out there I do not want photo's of myself used as others profile photo. Please be respectful. With that said... Hopeful Ill get to blogging more often.