The NF Diaries

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This is a blog about living with Neurofibromatosis

Posted by The NF Diaries at 3:32 PM

Nf and the backstreet boys

July 8th my dream came true of 14 years to meet The Backstreet Boys! It was a 4 hour drive to Tacoma to see the NKOTBSB concert but it was a...
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Apparently I'm not much of a blogger.. Maybe Ill change that. Something has been brought to my attention that I'd like to point out....
Headaches and bumps

So for a while I had been getting headaches for frequently and the ibuprofen just was';t cutting it anymore, so I switched to Excedrin m...
Headaches and caffeine

So I know some people stay away from caffeine when they have headaches or they get headaches from to much caffeine. With me it seems to help...
The NF Diaries "Special edition"

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Neurosurgeon tomorrow

Tomorrow Ill be heading up to Ohsu to see the Neurosurgeon and see what he wants to do about the Tumor. A little nervous getting up a 6:00am...
Neurpsergoen update

So it turns out my new doctor actually helped clone the NF gene, Also my tumor hasn't grown and he isn't sure why they said it had. ...
The Nf Diaries

Welcome! I've already started a montly newsletter and video series for others to share their stories about NF and now I wanted to start ...
The NF Diaries "Special edition"
Time are tough

Not being able to work full time is really putting a strain on me that's for sure. Trying to find ways to make some extra cash. Ive got ...